News

Bill offers hope for patients with rare diseases

BY Alaric DeArment

WASHINGTON — A bill passed in the Senate will provide measures to speed up the development of treatments for people who desperately need them.

The Senate voted Tuesday to pass S. 3187, the Food and Drug Administration Safety and Innovation Act, which now awaits President Barack Obama’s signature. The House approved a similar bill last week.

Among other features, the bill enhances accelerated patient access to new medical treatments; encourages the development of medical devices for small patient populations; provides for accelerated development of therapies that show early promise; enhances consultation with medical experts on rare diseases; and creates a priority review voucher incentive system for rare children’s diseases.

The legislation won praise from a group focused on rare diseases.

"Only about 250 of the nearly 7,000 diseases considered rare in the United States have therapies," National Organization for Rare Disorders president and CEO Peter Saltonstall said. "But treatments are desperately needed because most rare diseases are serious, many are life-threatening and about two-thirds of the patients are children."


Interested in this topic? Sign up for our weekly DSN Collaborative Care e-newsletter.

keyboard_arrow_downCOMMENTS

Leave a Reply

No comments found

TRENDING STORIES

Polls

Which area of the industry do you think Amazon’s entry would shake up the most?
News

Retailers earn top marks for customer service

BY DSN STAFF

WABAN, Mass. — Publix, Hy-Vee, H-E-B, Sam’s Club, Winn-Dixie, ShopRite and Giant Eagle were among the highest-rated companies for customer service, according to new research from the Temkin Group.

Among the winners, grocery chains were the only industry to earn a "strong" rating. Retailers, fast food chains, appliance makers and investment firms rounded out the top five. But consumers gave very low ratings to TV service providers and Internet service providers.

"Customer service is a critical moment of truth for many customers. It’s nearly impossible to deliver an overall great customer experience if you don’t get customer service right," states Bruce Temkin, author of the research and Managing Partner of Temkin Group. Temkin goes on to say: "It’s very encouraging to see that most companies have made improvements between 2011 and 2012."

The 2012 Temkin Customer Service Ratings is based on a survey of 10,000 U.S. consumers in January that covers the following 18 industries: airlines, appliance makers, auto dealers, banks, car rental agencies, computer makers, credit card issuers, fast food chains, grocery chains, health plans, hotel chains, insurance carriers, Internet service providers, investment firms, parcel delivery services, retailers, TV service providers and wireless carriers.

keyboard_arrow_downCOMMENTS

Leave a Reply

No comments found

TRENDING STORIES

Polls

Which area of the industry do you think Amazon’s entry would shake up the most?
News

Jolly Group introduces sports-themed bandages

BY Michael Johnsen

ELLENVILLE, N.Y. — The Jolly Group on Monday launched its Sports Shield brand of bandages featuring sports images.

Sports Shield bandages are available in two different sizes — adults and children — and come in eight designs: baseball, basketball, football, soccer, hockey, cheerleading, girls’ soccer and fun fashion.

The company will be rolling out two additional designs July 24: a rescue-themed bandage that features fire trucks and ambulances and a ladybug bandage adorned with butterflies and ladybugs.

Suggested retail price for 25-count packages is $2.50 each and $4 for the super-sized variety pack with 16 different themed bandages.


Interested in this topic? Sign up for our weekly Collaborative Care e-newsletter.

keyboard_arrow_downCOMMENTS

Leave a Reply

No comments found

TRENDING STORIES

Polls

Which area of the industry do you think Amazon’s entry would shake up the most?