August 20, 2012

MISSISSAUGA, Ontario — Through the support of Rexall’s vendors and partners, Rexall’s annual vendor golf classic raised more than Canadian $250,000 for the Rexall Foundation earlier this month.

The Foundation for Prader-Willi Research received a C$10,000 donation at the Aug. 14 event.  The Foundation for Prader-Willi Research is an organization dedicated to eliminating the challenges of Prader-Willi Syndrome, a rare genetic disorder, through the advancement of research.

August 2, 2012

Safeway has commenced its annual fundraising campaign for the Muscular Dystrophy Association.

July 9, 2012

Specialty pharmacy provider BioRx has acquired another specialty pharmacy provider based in Minnesota, BioRx said Monday.

June 26, 2012

An organization focused on Crohn's disease and ulcerative colitis has revamped its website, the group said Tuesday.

May 29, 2012

BioPlus Specialty Pharmacy has appointed a new person to head its bleeding disorders program, the company said Tuesday.

May 3, 2012

Drug makers could strike big with new treatments for rare diseases, according to a new report by a market research firm.

May 2, 2012

The Food and Drug Administration has approved a new treatment for a rare genetic disorder that affects 10,000 people worldwide.

April 19, 2012

Hidden Valley is updating the packaging on its salad dressing products to address gluten-sensitive and gluten-intolerant customers.

March 27, 2012

Hyperion Therapeutics has purchased rights to a drug for treating genetic metabolic disorders, the company said.

February 23, 2012

New research from Mintel suggested that the number of consumers that are gluten-intolerant/sensitive or have been diagnosed with celiac disease should be much greater.

February 16, 2012

The global market for celiac disease is expected to grow substantially over the decade as more people are diagnosed with the condition, according to a new report.

January 12, 2012

Drug maker Octapharma USA has appointed David Holliday as VP commercial development, the company said.

January 5, 2012

Biogen Idec and Isis Pharmaceuticals will work together on a drug invented by Isis for spinal muscular atrophy, the two companies said.

November 23, 2011

British drug maker Shire is looking to make a biotech drug for a rare genetic disorder at a new manufacturing plant in Massachusetts.

October 14, 2011

The Food and Drug Adminsitration has approved a drug made by ApoPharma for a complication resulting from treatments for a genetic condition that causes anemia, the agency said Friday.

September 15, 2011

GlaxoSmithKline and Amicus Therapeutics have started a late-stage clinical trial for a drug to treat a rare genetic disorder, the companies said.

September 7, 2011

After ending its five-week fundraising campaign to benefit the Muscular Dystrophy Association's efforts to develop treatments and assist people coping with neuromuscular diseases, Safeway announced that its stores raised $10.4 million for the organization.

August 2, 2011

Safeway announced its 10th annual campaign to benefit the Muscular Dystrophy Association's efforts to develop treatments and assist people coping with neuromuscular diseases.

June 14, 2011

The Food and Drug Administration has approved a new dosage of a drug made by Abbott for treating cystic fibrosis in infants, the drug maker said Tuesday.

June 8, 2011

The Food and Drug Administration has granted orphan drug designation to an investigational treatment made by Edison Pharmaceuticals for rare diseases, Edison said Wednesday.

April 28, 2011

Bayer HealthCare Pharmaceuticals and the World Federation of Hemophilia announced Thursday a three-year extension of Bayer’s sponsorship agreement with the WFH.

April 18, 2011

The Food and Drug Administration declined to approve a drug made by Eli Lilly for treating a disease of the pancreas that often occurs in patients with cystic fibrosis, Lilly said.

April 7, 2011

Pfizer is partnering with San Diego biotech company Zacharon Pharmaceuticals to develop treatments for rare genetic disorders Zacharon said Thursday.

March 21, 2011

Patients with bleeding disorders could be eligible for a scholarship from a specialty pharmacy provider that specializes in treating them.