CINCINNATI Bayer HealthCare and BioRx, a specialty pharmaceutical company, have joined together to publish a children’s book about hemophilia.
Written by Chris Perretti Barnes, the mother of a young boy with hemophilia A, I AM NATE is the second in a series of books intended to educate children about hemophilia.
“For children living with hemophilia, learning and talking about hemophilia and inhibitors can be overwhelming, confusing, and scary,” said Barnes. “I AM NATE can help parents open up lines of communication with their child and begin a discussion in a friendly, fun, and safe way. It is wonderful that both Bayer and BioRx value educating youth in the hemophilia community.”
Hemophilia is an inherited blood disorder characterized by prolonged or spontaneous bleeding, especially into the muscles, joints or internal organs that effects about 17,000 Americans. Deficient or defective blood coagulation proteins, known as factor VIII or IX, cause the disease. The most common form of the disease is hemophilia A, or classic hemophilia, in which the clotting factor VIII is either deficient or defective. Hemophilia B is characterized by deficient or defective factor IX.